Meeting Alzheimer’s: Companionship for Caregivers
“Caregiving is a defining moral practice. It is a practice of empathic imagination, responsibility, witnessing and solidarity with those in great need. It is a moral practice that makes caregivers, and at times even the care receivers, more present, and thereby more fully human.”
—Dr. Arthur Kleinman, Harvard Medical School Professor and primary caregiver for his wife, Joan
Based on what we know about Alzheimer’s disease and the observations we may make with “eyes to see but do not see” and “ears to hear but do not hear,” we could erroneously conclude that the potential and purpose of persons with Alzheimer’s is all used up. In order to discover their potential and purpose, we must look at them with the “fresh” eyes of one who is looking for the holy. Then, it is up to us—those who know and love persons with Alzheimer’s—to reveal their value so the rest of the world can also see and appreciate them.
Incarcerated Family Member
“We…covenant to promote and affirm the inherent worth and dignity of every person.”
—Purposes and Principles of the Unitarian Universalist Association
Unitarian Universalists hold justice to be a particularly important aspect of right relationships among human beings. Among the Principles and Purposes that UU congregations covenant together to affirm and promote are “justice, equity and compassion in human relations,” and “the goal of world community with peace, liberty, and justice for all.” And among the sources from which our living tradition draws, we lift up “words and deeds of prophetic women and men which challenge us to confront powers and structures of evil with justice, compassion, and the transforming power of love.”
But how can we temper justice with mercy?
Missing God
“As our faith expands, we can find new, more complex ways of perceiving the unknowable.”
For many of us, it proves impossible to limit religious thought to a narrow creed. The more we learn, the more difficult it becomes to restrict ourselves to the definition of ultimate reality, or God, that we grew up with, or held when we were young. James Fowler writes about this in Stages of Faith: The Psychology of Human Development and the Quest for Meaning. But as we progress through different stages of faith development, we may find that certain concepts we felt we had outgrown still hold meaning for us. One of these concepts may be “God.”
Divorce
“Healing does not mean going back to the way things were before, but rather allowing what is now to move us closer to God.”
—Ram Dass
Just as much as marriage, divorce or separation can be a holy choice. When divorce is grounded in deep reflection and care, it can be an expression of love and commitment to life. The covenant of committed partnership is an important one, to be honored and respected. However, ’till death do us part,’ is not a vow to cling to, if the relationship itself is causing death.
A belief in continuing revelation in our search for truth and meaning says that, when new information becomes clear to us, honoring that information is a spiritual path to be followed.
Loss of a Spouse/Partner
To live in this world
you must be able
to do three things:
to love what is mortal;
to hold itagainst your bones knowing
your own life depends on it;
and, when the time comes to let it go,
to let it go.—Mary Oliver from “In Blackwater Woods”
I would love life to be this neat and linear—first you love, then you hold, then you let it go. But living is messy, not neat or linear.
I’ve thought about being able to bargain with God—I certainly know many people who use prayer to get them through what seem to be unfathomable depths. But I have a hard time getting my head around the actor God of my Jewish childhood who had the power to make things happen in response to human behavior.
I prepared for ministry with the Christian God, who at least had a little more time on earth through his son, Jesus. But the God in the Christian testament is even less personable and no more believable to me. And though the God metaphor is my preferred vocabulary for discussing the sacred, my image of the mystery which connects us to one another and to the larger universe is neither personal nor omnipotent.
This makes it kind of hard to know how to invoke the spirit of connectivity and support that I have longed for as I go through the biggest challenge of my life thus far—watching my soul-mate succumb to cognitive dementia over the last six years. She passed away in July, so the years of observing her suffering are behind me, but my needs for connection to the larger universe remain.
